I can't believe that in less than one month, we will be celebrating the one year anniversary of day that God saved Zane's life. One year already! Wow.. when I step back and look at how far Zane has come, it leaves me in awe of God's goodness and faithfulness.
Right now, Zane's neck is still healing up from his last surgery. We were in Boston a couple of weeks ago and had his burn/plastics surgeon look at his neck. The next step is going to be liposuction to remove excess fat from the flap and an advancement of the flap, which is similar to a face lift, only on the neck. It will contour the tissue so that it looks like a normal neck again, or in his surgeon's words, "It won't look like a muffin under your chin". Zane prefers to call it his double chin. :) This procedure can't be done until atrophy sets in more (the tissue softens up and almost becomes "flabby"). We figure it will be a couple of months before this will happen, at which point we'll schedule his surgery.
When we were in Boston last week, we also went to Mass Eye & Ear for another audiology consult. At this point, we know hearing aids are not going to work. Zane's hearing loss is so bad in his right ear that hearing aids only amplify the distortion. His left ear is not bad enough that a hearing aid actually helps. We talked to a doctor about cochlear implants. However, they told us that the implants will only be an option once BOTH ears have dipped to a 60% hearing loss. The doctor told Zane he was at about 50% loss. He also said that it will not get better, and that it will almost definitely get worse over time. His advice was to enjoy what natural hearing Zane had left and follow up every 6 months until cochlear implants were deemed an option. So, rather dismal news, but we're glad he told us the honest truth. We will just have faith and keep going.
Zane and I have continued to have opportunities to share our story with people at various churches and gatherings. It has been a fantastic blessing and we are working on forming a formal not-for-profit ministry. More on that later, but we are super excited about it.
I know I've been lax on updating over the past few months, but things should be getting better now. Thank you so much to those of you who are still following along. Your web "friendship" is encouraging.